Evangeline is our fifth blessing from the Lord. She was born in January 2008 with an undiagnosed Congenital Heart Defect; Transposition of the Great Arteries. At 10 days old, she presented with respiratory distress. In the ER she crashed and a team of a dozen doctors worked through the night to revive her tiny body as it went into shock. After diagnosing her broken heart, she was Life Flighted to MUSC in Charleston for open heart surgery. She has since battled Congestive Heart Failure, Chronic Lung Disease, severe reflux, Failure to Thrive and auto-immune disorders.
Her name means "Peace", though her short life has been anything but! We sense that God is teaching us "peace in the storm" through her little life! She is our precious miracle and a testimony to the power of prayer and Gods gracious healing. This is the journal of her life and those who love her.
For my heart-mom friends out there. A must see! Im absolutely a puddle now!
5 comments:
Rachel C
said...
Wow. I'm crying like a baby after watching that. Hearing that heartbeat - that's your first connection with your baby before they are even out of the womb. I can't imagine having to hear one of my baby's hearts beating in someone elses body. Amazing.
Now there are several puddles! As a mother of 3 healthy, grown kids, I can only imagine the grief and anguish those parents have been through, and then the joy of hearing their daughters heart beat on. As a grandmother of a heart kiddo, I stand amazed at the kindness of that life-giving gift.
5 comments:
Wow. I'm crying like a baby after watching that. Hearing that heartbeat - that's your first connection with your baby before they are even out of the womb. I can't imagine having to hear one of my baby's hearts beating in someone elses body. Amazing.
Wow...wow. There are no words. Only tears. Incredible.
Oh my... tears are flowin'... what an amazing story!
Now there are several puddles! As a mother of 3 healthy, grown kids, I can only imagine the grief and anguish those parents have been through, and then the joy of hearing their daughters heart beat on.
As a grandmother of a heart kiddo, I stand amazed at the kindness of that life-giving gift.
In puddles with you! That is one of the most powerfully precious stories!
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